FAGARTIKLER
1. " Stickler syndrom- en underdiagnostisert tilstand?", den norske legeforening, C. Klingenberg mfl. 2001. https://tidsskriftet.no/sites/default/files/pdf2001--3172-5.pdf
2. "Therapautic and diagnostic advantages in Stickler syndrome", M. Snead mfl., 2020. https://journals.sagepub.com/doi/full/10.1177/2633004020978661?fbclid=IwAR0x1Cinp5dzb6CA8EiLESVrJiulDQpC8kSCqeYnxQXWTLDL_cGiMunxRVE
3. "Stickler syndrome: A Review of ckinical manifestations and the genetics evaluation", J PERS Med, M. Boothe mfl., 2020. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7564399/
4. "Stickler syndrome: Airway Complications in Case series of 402 Patients", Anesth. Analg. J. Zimmermann, 2021. https://pubmed.ncbi.nlm.nih.gov/31856005/
5. "Stickler syndrome- lessons from a national cohort", M. Snead mfl.,2021. https://www.nature.com/articles/s41433-021-01776-8
6. "Hearing loss in Stickler syndrome: An Update", Genes (Basel), F.R.E. Acke, 2022. https://pubmed.ncbi.nlm.nih.gov/36140739/
7. "Quality of Life in Children and Adolenscent with Stickler syndrome in Spain", J.J Fernàndez- Pèrez, Children (basel), 2022. https://ncbi.nlm.nih.gov/pmc/PMC9406814/
8. "Muscoskeletal and Gait Characteristics in Patient with Stickler sydnrome : A cross- sectional study.", Children, J.J Fernàndez- Pèrez, 2022. https://pubmed.ncbi.nlm.nih.gov/36553338/
9. "Cambridge Prophylactic Protocol, Retina Detatchment, and Stickler sydrome", New Eng. Med, P. Alexander mfl., 2023. https://pubmed.ncbi.nlm.nih.gov./37018499/
10. "Preventing Retinal Detachment: The Encircling Laser Retinopexy Technique", Clin Opthalomol, R. Morris mfl, 2023. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10239236/
11. "Effect of Axial Length on Lattice Degeneration and Retinal Detachment in Stickler Syndrome", Kristine B. Boysen mfl, IOVS, ARVO Journals, 2024. https://iovs.arvojournals.org/article.aspx?articleid=2799025&resultClick=1
Andre brukergrupper om Stickler syndrome;
SIP (Stickler involved people) har gått sammen med Marfan fundation i US.
Sticker UK har nylig fått en flott ny nettside og nye frontfigurer.
Danmark har en lukket facebookgruppe, Sticklers syndrom- gruppe for alle med dette inde på livet!